We are forever indebted to Carrie and Charlene, who always made us feel heard, supported and that our son’s issues weren’t so abnormal, but actually quite similar to the hard experience of many families. This made us not just value Carrie and Charlene as a part of our son’s care team but we saw them as playing an essential and central role. Anytime I felt beat down and discouraged by our situation or interactions with specialists at the hospital, they seemed to find a way to pick us back up again and help us find things to celebrate about our son’s journey even though he had significant feeding challenges. Our son is now almost a year out from being tube fed, and every time I see him stuffing food into his mouth, it reminds me of how thankful we are to have had Carrie and Charlene supporting us on our feeding journey.
